Dekar is in this NILMDTS presentation.  It’s babies born with Trisomy 13 or 18.  (He’s shown at just over a minute’s time…)

From the YouTube description:

This video was shown at the 2008 SOFT** Conference and is dedicated to all of the parents and families of babies born with Trisomy 13 and Trisomy 18.
**Support Organization for Trisomy 18, 13, and Related Disorders (SOFT)

To learn more about Now I Lay Me Down to Sleep, please visit our website at: http://www.nowilaymedowntosleep.org and our support forum at: http://www.nowisleep.com.

To learn more about Trisomy, visit: http://www.trisomy.org/index.php